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PANDAS Network is a national nonprofit focused on PANDAS/PANS/AE, dedicated to providing resources and support to families affected by the disorder. It offers education, news, articles, videos, webinars, and tools for parents, clinicians, and educators to understand signs, diagnosis, and treatment, plus patient stories and research updates. The organization also advocates for patients, including guidance on navigating insurance denials for treatments like IVIG, and runs programs and events to raise awareness and advance research and care.
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